The Illinois Disgrace
THE ILLINOIS DISGRACE!
The "State of the States in Developmental Disabilities" is a nationwide study of how states rank in serving individuals with developmental disabilities. The report was first published 30 years ago. The Report is supported in part by the United States Department of Health & Human Services. The Report is distributed in collaboration with The American Association on Intellectual & Developmental Disabilities (AAIDD). The complete 309 Report is available for purchase from AAIDD.
The 2008 study reflects that Illinois ranks:
- 51st (includes D.C.) in percentage of persons with developmental disabilities in out-of-home settings residing in settings of 6 or fewer. (Page 18, Table 4)
- 51st (includes D.C.) in utilization rate by individuals with developmental disabilities in settings for six or fewer. (Page 19, Table 5)
- 47th (includes D.C.) in home and community based services (HCBS) waiver spending per capita. (Page 26, Table 7)
- 42nd in percentage of individuals with developmental disabilities in supported or competitive employment. (Page 41, Table 11)
- 44th (that is, the 7th highest) in the number of residents with DD in nursing home settings. (Page 56, Table 16)
- 43rd in fiscal effort - spending in the community. (Page 59, Table 18)
- 41st in spending for supported living and personal assistance per capita. (Page 37, Table 10)
- 36th in percentage of change in spending for community services (2004 to 2006). (Page 8, Table 3)
- 27th of the 31 States receiving "Money Follows the Person Grants", in the percentage of current institutional residents (16+) proposed to be transitioned to small community settings. (Page 30, Table 9)
- 9th in fiscal effort - spending on institutions. (Page 59, Table 18)
- 6th in the estimated number of individuals with developmental disabilities living with caregivers 60 years and older. (Page 62, Table 19)
United Cerebral Palsy (UCP) in its report "The Case for Inclusion" (2010) ranks ILLINOIS 48th as to serving individuals with developmental disabilities, but as to serving individuals in settings of 6 or fewer, 49th, and in settings of 3 or fewer, 50th!
The National Alliance for the Mentally Ill (NAMI) in its last national report, grades ILLINOIS as a "D". Only eight states received a lower grade.
Why is this the case you might ask? Illinois is the 10th wealthiest state per capita. The answer is that individuals with developmental disabilities, your child and my child, are not the priority that individuals with developmental disabilities are in other states, in just about ALL other states.
All states are having "budget" issues. Yet other states, even in difficult economic times, are making our children a priority. It is a disgrace. Shame on Illinois. But for the grace of G-d, it could be their child, grandchild, sister, or brother.
Tell your elected officials to just "do the right thing". Ask the Governor, your State Representative and State Senator, how we can be listed, again, and again on the bottom of the states.
I stated "again and again", for we have been on the bottom of the states for many years, for many "State of the States" reports. Speak up, and speak out for our children.
- A letter to fellow parents
- A letter to siblings
- Why is it a secret?
- The Illinois Disgrace
- Heart to heart family educational group presentations
Upcoming Lectures and Events
Brian will be speaking at these locations
- [Oak Park] Oak Leyden Developmental Services 05/23/13
- [St. Charles] St. Charles Epilepsy Group 06/04/13
- [San Antonio, TX] 2013 NAMI National Convention 06/28/13
- [Pittsburgh, PA] The Autism Society of America Nat. Conf. 07/10/13
- [Bellevue, WA] The Arc of U.S. 2013 National Convention 08/02/13
- [Elk Grove Village] Clearbrook's Vendor Expo 09/12/13